Episode 029: Overcoming a Rare Disease and Fear with Marc Schmidt

Episode Summary
Marc Schmidt was born with Opitz GBB Syndrome, a rare condition that arrives as a package deal. Cleft lip and palate. Surgical intervention required at birth. A speech pattern that has drawn stares and dismissive comments since he was four years old. Daily physical management that most people in his life do not know about and that he has learned to carry without making it a headline. Teachers who treated him differently. Kids who excluded him from birthday parties. A childhood that had him feeling like he was walking alone before he had the vocabulary to explain why.

And through all of it, a quiet pull toward television and broadcasting that he spent years talking himself out of. Who is going to want to watch me? Who is going to want to listen to me? Those were not passing thoughts. They were the operating belief system that kept him behind the camera instead of in front of it for years. The version of Marc that finally hit record was not built in a single moment. It was built through a decade of networking events that showed him people genuinely wanted to see him succeed, a promotion into management that cracked his confidence ceiling, a blog, and eventually a podcast he called Mark My Words, a tribute to the entrepreneurs who took unlikely paths to the lives they wanted.

Today Marc works at Disney Streaming, has nearly two hundred podcast episodes under his belt, speaks on stages, and creates content on Substack. He did not wait until the syndrome was gone or the voice was different or the confidence felt permanent. He did it while all of those things were still a factor. And he is still doing it every week.
This episode is for anyone who has convinced themselves they need to look or sound a certain way before they are allowed to hit send.

In This Episode, You'll Discover:
  1. What Opitz GBB Syndrome actually is, how Marc describes it as a package deal where some people get certain challenges and others get different ones, and the one daily physical reality he carries that most people who know him have no idea about
  2. How Marc's mother shaped the foundation of who he became, waking him up at five in the morning for phonics and grammar lessons, showing up for every class event, and quietly working to make the world see beyond what was on the surface
  3. The decade-long corporate job that unexpectedly became a turning point when Marc was promoted into management, what that validation unlocked in him, and why leaving that role sent him searching for fulfillment through entrepreneurship and content
  4. The fantasy Marc carried for years about bullies and naysayers eventually coming back to apologize, how Facebook dismantled that expectation gradually, and what he replaced it with when the apologies never came
  5. Why Marc refuses to go down the rabbit hole of assuming he was passed over or dismissed because of how he looks or sounds, and what that discipline has protected him from becoming
  6. The networking events and early encouragers who changed his belief about whether anyone would want to hear from him, and why it took getting beaten over the head more than once before it actually sank in
  7. Why Marc says the primary blocker keeping him from the next level is himself, his own caution, his reluctance to take risks, and the honest self-assessment of what he could be doing that he currently is not
  8. What Marc would say to anyone sitting in their car after a hard moment, convinced they will never be heard, from someone who has had every reason to believe exactly that and chose differently anyway
Key Takeaways:
  1. You Have Every Reason Not To. Do It Anyway. Marc is honest that he has every reason to delete Mark My Words and walk away. The condition, the daily management, the voice, the history. Every episode he releases is a decision made against a full stack of legitimate excuses. That is not inspiration porn. That is what showing up actually looks like for most people.
  2. Stop Waiting for the Apology. The bullies are not coming back. The teachers who dismissed you are not going to call. The naysayers who sold you short have moved on and are not tracking your trajectory. Building your life around a moment of validation that is never coming is not motivation. It is a trap. Move on. Do it for yourself.
  3. Your Voice Is Not the Problem. Marc has people tell him their voice sounds weird and that is why they have not started. His response is immediate and specific. He has a voice that sounds genuinely different, built a nearly two hundred episode catalog, and people keep showing up to listen. Your voice is not the barrier. Your decision to hit record is.
  4. Practice Is the Only Path. Nobody comes out of the womb able to host. Mr. Beast's first YouTube video was terrible. Marc's first episodes were fine but pale next to what he does now. Karl's first stage talk had sweat running down his legs. The reps are the whole thing. Do it scared. Do it badly. Do it again.
  5. Little Victories Compound Into Evidence. Marc does not have one single turning point that rewired everything. He has a collection of small moments. A first podcast guest who believed in him. A boss who promoted him. A networking event where someone saw past the surface. Those accumulate. When the noise gets loud, go back to the evidence. It is always there if you built it.
  6. The Rabbit Hole of Why Has No Bottom. If you start looking for reasons you were passed over, dismissed, or overlooked because of something you cannot change, you will find them everywhere. That thinking does not reveal truth. It builds a cage. Marc made an early decision not to go there and it has protected everything he has built since.
  7. Fulfillment Is Not on the Corporate Ladder. Marc climbed it, reached a meaningful rung, and discovered the fulfillment was not where he expected it to be. The promotion was real. The validation was real. But it was not enough on its own. The question of how can I make life more fulfilling for Marc is what sent him toward content and community. That is a question worth asking before the ladder does the answering for you.
  8. The Primary Blocker Is Usually You. Marc's answer to the question of what is keeping him from the next level was immediate and unvarnished. Himself. His caution. His hesitation to take risks. Not the syndrome, not the voice, not the industry. Him. That kind of self-awareness is the starting line for actual change.
Timestamps:
  • [00:00] Karl introduces Marc Schmidt: Disney Streaming, nearly two hundred podcast episodes, stage speaker, Substack creator, born with Opitz GBB Syndrome, and a version of himself built one decision at a time
  • [03:00] What it felt like from age four or five to sense that the world was going to handle you differently, and the loneliness of feeling like you were walking that path alone
  • [07:00] Marc's mom: five AM phonics sessions, class events, and the quiet work of trying to make the world see past the surface
  • [11:00] The syndrome explained: Opitz GBB as a package deal, what most people do not know about Marc's daily physical reality, and how he has learned to carry it without making it everyone's headline
  • [15:00] How Marc handles the workplace looks, the borderline interview questions, and the moments where he could spiral into assuming the worst
  • [19:00] The limiting belief that kept him behind the camera for years: who is going to want to watch me, who is going to want to listen to me
  • [23:00] Karl's ad break: The Grit Code Exposed at https://gritcodeexposed.com
  • [24:00] The ten-year corporate job, the promotion into management, and what it unlocked in his confidence and his sense of what was possible
  • [28:00] Leaving the corporate role, freelancing, and the growing awareness that fulfillment was not where he had been looking for it
  • [32:00] The fantasy of bullies coming back to apologize, how Facebook slowly dismantled it, and what Marc replaced it with
  • [37:00] Karl's own version of proving someone wrong and why doing it for the wrong person eventually runs out of fuel
  • [42:00] Networking events and the people who changed what Marc believed about whether anyone wanted to hear from him
  • [46:00] Karl's ad break: The Grit Code Exposed at https://gritcodeexposed.com
  • [47:00] The person who will not start because their voice sounds weird, and Marc's response from personal experience
  • [51:00] Just hit record: why practice is the only path and how Marc, Karl, and Mr. Beast all started badly and kept going
  • [55:00] Approaching two hundred episodes, Disney Streaming, stages, and what Marc is most fired up about right now
  • [58:00] The sixty-second message to the version of Marc sitting in a car after a hard moment, convinced he would never be heard
  • [01:01:00] Grit defined: picking yourself up, dusting off, and keeping on going even when you feel like quitting
  • [01:02:00] The directive when the noise gets loud: go back to every time you bet on yourself and proved you were valid
  • [01:04:00] Ryan's question from Episode 27: what is the primary blocker keeping you from the next level?
  • [01:06:00] Marc's honest answer: himself, his caution, his reluctance to take more risks
  • [01:08:00] Marc's question for the next guest: what did you do in the moments you felt like quitting that kept you going?
  • [01:10:00] Where to find Marc and Karl's close
Resources & Links:
  • Podcast: Mark My Words with Marc Schmidt (nearly two hundred episodes interviewing entrepreneurs and founders on their unlikely paths)
  • Challenge: The Grit Code Exposed at https://gritcodeexposed.com
Connect with Marc Schmidt:
Connect with Karl Jacobi:

Creators and Guests

Karl Jacobi
Host
Karl Jacobi
Host of The Grit Factor Podcast, Resilience & Performance Coach, Founder, Entrepreneur, Combat Veteran
Episode 029: Overcoming a Rare Disease and Fear with Marc Schmidt
Broadcast by